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Mortgage insurer raises awareness of bone marrow failure syndrome

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Reporter 4 minute read

Loan protection specialist ALI Group has partnered with not-for-profit organisation Maddie Riewoldt’s Vision, to raise funds and awareness among mortgage brokers for Bone Marrow Failure Syndrome (BMFS).

The Maddie Riewoldt’s Vision was established by the Riewoldt family in June 2015 following the death of Madeleine Riewoldt – sister of St Kilda footballer, Nick Riewoldt, and cousin of Richmond Football club co-vice captain, Jack Riewoldt. 

In collaboration with the Snowdome Foundation (an NFP that funds research into new treatments for blood cancers), Maddie Riewoldt’s Vision aims to raise funds to find new treatments for bone marrow failure.

Bone marrow failure syndrome includes a group of disorders that can either be inherited or acquired. It affects the bone marrow that makes blood cells and can result in an inability to make enough blood, resulting in complications arising from a lack of oxygenated blood, a lack of infection-fighting white blood cells and a shortage of platelets, which help the blood clot.

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Each year, up to 140 Australians are diagnosed with BMFS.

 “I was drawn to the work of the Maddie Riewoldt’s Vision as soon as I heard about it,” ALI Group CEO Huy Truong said. 

“The Maddie Riewoldt’s Vision resonated with me and the team at ALI Group on many levels. Firstly, we see the impact of serious illnesses on young adults, so it is good to be able to support an organisation that focuses on finding a cure for BMFS, which is most common among young adults. 

“Secondly, the Maddie Riewoldt’s Vision is very family orientated and this aligns with our strong sense of family – we protect home buyers and their families on a daily basis. 

“And lastly, serious illnesses such as cancer and heart attack often receive a lot of attention, and in turn funding, so it is nice to be able to help shine the spotlight on BMFS,” said Mr Truong. 

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The charity partnership was launched at an event on 16 March at the Melbourne Cricket Ground. This was attended by mortgage brokers and AFL stars, Nick Riewoldt, Brendon Goddard (Essendon), Darcy Vescio (Carlton) and MC Tiffany Cherry. 

Nicky Long, CEO of the Maddie Riewoldt’s Vision, commented: “We’re delighted to partner with ALI Group to raise funds and awareness amongst the broking industry. 

“As you know, rarer diseases often don’t get the investment and attention they deserve and it’s the targeted, focused approaches that often reap the greatest rewards.”

Mortgage insurer raises awareness of bone marrow failure syndrome
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